Monday, July 20, 2009
And this is my body on fibromyalgia--
i think i've found a way to help my 21 year old son understand fibromyalgia.
It was all because of a conversation. One of the million or so we've had on the subject since i was diagnosed about 4 years ago. i understand it doesn't "show." All limbs are apparently still connected. i don't walk with a limp. But we've been going through this for some time now. FOUR YEARS. Roughly.
He was trying to explain to me how there were things i could do. What exactly? i questioned politely. Well, he said, if you just push harder at things then you get better and better at them. (i believe exercise was the subject matter--the skinny little high metabolism can eat anything and everything and never gain an ounce punk of a guy.)
This is where you are wrong, i say calmly (for how i felt, at least.) Think of it this way, i say.
The reason having fibromyalgia is as painful as it is comes from the actions of the central nervous system. You see, IT thinks i am in much more pain than i should be for the amount of effort my body has made. The nerves are over-sensitive. NOW: picture a girl. An angry, emotional girl. Because she over-reacts to things with sobs or anger, you do this one little thing, she over-reacts, and before you can blink she is screaming in your face. This is what my nerves do on fibromyalgia--i do one little thing, they over-react. A little of what seems normal movement causes screaming in my muscles and such. The next time i say "i hurt" i want you to remember that hysterical girl screaming in your face. THAT is my body on fibromyalgia.
Does he "get" it yet? i can't know for sure, or if he ever truly will.
And this doesn't even touch the brain or emotional issues involved.
But you can just bet i will tell both him and you about those as soon as i can think of a good way to explain. Trust me.